Hi! I'm Amanda. I'm a Tetralogy of Fallot patient and a two-time open heart surgery survivor. My second open heart surgery opened my eyes to the immense physical and emotional effects it has on patients, as well as the gaps in how I was prepared for the treatment experience by my care team.
Through education, advocacy, recovery, and self-care, I'm able to live my life the way I want to. Now I want to help you do the same!